Tribune News Service
Ambala, March 27
Hundreds of complainants reached Ambala Cantonment here to narrate their grievances to Haryana Home and Health Minister Anil Vij at his weekly Janta Darbar today.
Minister had work
All complaints will be brought to the notice of the minister for action. He was scheduled to hold the darbar, but due to some urgent work, had to leave — Ajay Kumar, a PA of Anil Vij
However, the minister was not available at the venue and his personal assistants (PAs) collected the complaints on his behalf.
The absence of the minister disappointed many complainants as they wanted to narrate their grievances to the minister.
Complainants from Fatehabad, Karnal, Ambala, Panipat, Sonepat, Yamunanagar, Kurukshetra and Kaithal had reached here today with cases of molestation, encroachment, missing child, immigration and murder.
Some complainants, along with women and children from Uncha Samana village of Karnal, had come to the darbar carrying bundles of their land records and complaints on their head against land grabbers.
Sushila Rana, mother of a 19-year-old boy from Naraingarh, reached here with her son on a wheelchair, seeking the authorities’ help to arrange access and affordability to treatments for spinal muscular atrophy, a rare life-threatening neuro-muscular genetic disorder. As per information, there are over 25 children in Haryana with this disorder. Recently, a minor girl in Mumbai was provided the therapy for which Rs 16 crore were crowdfunded.
Sushila said, “I can’t see my son in this situation. We have a very small land holding for farming and can’t spend crores of rupees. We have been running from the PGI to other hospitals for the past 16 years. There are more parents like me. The government should help us. We will come again to meet the minister.”
Deepansh, pursuing BA first year through correspondence, said “I was able to walk till three years ago, but now I am on a wheelchair. I need help to even sit, eat and sleep. I request the government to help us.”
Archana Panda, co-founder of the Cure SMA Foundation of India, said “Currently, we have a data of over 525 children in India and more cases are coming to light as people are getting aware. Now the medicine is available and a pharma company is ready to enter India with its medicine. We request the state and the central governments to come forward for these children, invite the company for negotiations and provide the medicine at affordable prices. The parents can’t afford to purchase medicines worth crores of rupees and crowdfunding is not possible in every case as it happened in the case of the Mumbai girl.”